The Glenn

Be strong brother, I wait for u ok!

Pre-Op X-ray and Bloodwork

The Glenn!

Post-Op

Hey Mom let's go get Ren!

The journey to this point had not been easy. It's been a roller coaster ride for the whole family filled with both frustrated moments and joy. But it's looking up for Team Miyasaki! Ren finally had his Glenn on the 21st of August. It was a great day. All the hard work paid off. The surgeon came out of the OR and told daddy that Ren did great! She was really impressed at how well his pulmanary artery grew due to his BT shunt. This allowed more blood flow to his pulmanary artery causing it to grow bigger! The proceedure took three hours and he was taken to the CTICU to recover. As soon as we seen him we could tell that he was doing well. His color was pink and fleshy, no longer blueish/grey. His breathing was slower, not rapid and weathered. He opened his eyes and cried fairly quick after coming out of surgery. This time his chest was closed but still was intubated just till the evening. Everyday he is progressing. One by one a tube here a wire there, comes out and the journey to the recovery floor is near. It's taken a lot for our family to get to this point. The goal of coming home to Hawaii is within reach.
Rhys is getting bigger everyday. He's eating more and trying different kinds of food. He's crawling and climbing everywhere. He's getting so fast that mommy and daddy need to watch him closely. He has four teeth, two on top, and two on the bottom. Mommy still breastfeeding...ouch!
As for mommy, she's doing fine. Daddy is here to help till we all can come home as a family! It's always good to have the family together. Things are looking up for the team! We are on our way home soon! Thank you for all of your prayers, love, and support! We couldn't have gotten this far and gone through what we've gone through without you! We'll see you all soon!

Love, Team Miyasaki

Cold's

Ma you should check my head, I'm not feeling good

Hhhhwink ;-)

Now Rhys is sick and I play!

Feeling better braddah let's both play!

I'm so happy almost done!!!

It's been a rough 10days without daddy here to help. During that time, Ren caught a bug that almost landed him back in ICU. But thank God! It cleared up and he happily passed it on to Rhys. It was payback for all those times he stole Ren's binki! Grandma couldn't come up this time. she caught a bug as well. So we told her to take care of herself first so she can take care of us!

So far the virus setback isn't affecting Ren's scheduled cath. So far so good....we're on for the 13th. And with those results, they will finalize the date for the Glenn. We're that much closer to coming home.

Mommy is still trying her best to keep the family's spirit together. And for the first time in a long time, mommy and daddy got to go on a date to Father's office to try their famous burger and sweet potato fries.....yum-o! But it was the compAny that made it extra special.
And the home stretch begins......